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Cushing syndrome resources

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Educational resources you can download

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Understanding Cushing syndrome

Understand the basics of Cushing syndrome (hypercortisolism), how it affects your body, and the associated health consequences.


Download Guide
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Could you have hypercortisolism?

Access a useful signs and symptoms checklist to determine whether Cushing syndrome screening may be appropriate for you.


Download Guide

Descargar la lista de síntomas en español
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What if your doctor recommends a DST?

Understand how cortisol is regulated in your body and what you can expect when taking the dexamethasone suppression test (DST).


Download Test Overview

Descargar el resumen de la prueba
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Cushing’s disease and syndrome: The evolving story of hypercortisolism

In a podcast from Pituitary World News, experts discuss how the understanding of Cushing syndrome has expanded to include a range of symptoms, disease causes, and laboratory test result ranges.


Listen to podcast

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Patient advocacy groups

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Pituitary World News

Pituitary World News (PWN) is a pituitary disease–focused nonprofit educational organization connecting thought leaders to patients, creating access to critical expertise.

PWN is a network of highly informed professionals and individuals affected by pituitary disorders, with the goal of ensuring patients are diagnosed early and accurately.


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The Conley Cushing’s Disease Fund (Kick Cushing’s)

The Conley Cushing’s Disease Fund, based in Hershey, Pennsylvania, is dedicated to serving patients with Cushing disease and their families. The organization underwrites opportunities for medical students, residents, and professionals focused on the early diagnosis of Cushing disease through grand rounds, CME classes, panel discussions, and lunch-and-learn sessions.


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The Cushing’s Support & Research Foundation

The Cushing’s Support & Research Foundation (CSRF) is a nonprofit organization that provides information and support for patients with Cushing disease or Cushing syndrome and their families. A large database enables CSRF to connect patients with each other. CSRF provides high-quality medical information through its Medical Advisory Board.


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Cushing's Connection (Facebook Group)

Cushing’s Connection is committed to improving the lives of people living with Cushing syndrome (also called hypercortisolism). Through this community you can find information, resources, and support.


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Pituitary Network Association

The Pituitary Network Association is an international non-profit organization for patients with pituitary tumors and disorders and their families. PNA for 30 years has been supported by an international network of the world's finest physicians and surgeons and has grown to become the world's largest and fastest growing patient advocacy organization devoted to the treatment and cure of pituitary disorders.


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Cushings.org

Cushings.org is a satellite site of the Pituitary Network Association; an international non-profit organization for patients with pituitary tumors and disorders and their families. Cushings.org was developed to offer more educational resources and information specifically geared for Cushing’s patients.


Stories from people living with Cushing syndrome

Jenny Headshot

“It was scary to know that I had a rare disease. … However, more than anything, I was so relieved to finally know that I wasn’t crazy …”

Jenny grew frustrated after numerous doctors could not figure out what was causing her symptoms. Fed up and exhausted, she took matters into her own hands.


Read Jenny’s Story
Pat Headshot

“My doctors kept chiding me to lose weight and exercise. I couldn’t convince them that I was trying to eat healthy and exercise.”

Pat had always been fit and active—even devoting his career to athletics. Then, out of nowhere, his health and behavior began to change.


Read Pat's story
Charsetta Headshot

“The weight gain was very noticeable, and then I noticed facial hair. I started to feel less attractive. ...”

A flurry of unusual symptoms began to surface when Charsetta was in her early 20s. Little did she know, this was just the beginning of her journey with hypercortisolism.


Read Charsetta's story
Nicole Headshot

“I tried taking blood pressure medication. I tried going off birth control. I even tried taking phentermine to counteract the weight gain. Nothing helped. …”

After years of believing she had a stubborn case of polycystic ovary syndrome (PCOS), Nicole finally found the answer to her symptoms that would change her life.


Read Nicole's story

See frequently asked questions about Cushing syndrome.


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